Well, as many of you know, I don’t seem to blog much any more ..Guess life kids and a busy working mom has gotten in the way of a lot.
But just had to write today, Today is my twins birthday….October 4th.
Still not an easy day for me, all my mind goes to is a scene I play over and over in my head as I’m being wheeled to the OR saying it’s too soon, it’s too soon and then later holding my daughter as she passed away…not really the best of memory days for me..
Today my surviving twin turned 6 years old! So hard for me to believe that she is really 6 years old.
She’s doing really, really well, all things considered.
From a 26 1lb/10 ounce little baby to a 33 pound TALL little girl that is doing really well in Kindergarten.
We had our age 6 IEP transition meeting and thankfully my school is really incredible and basically “found” a way for her to qualify again. They are so great at understanding that we still don’t really know if she is going to have issues when it comes to learning in a few more years and they would rather have the IEP in place (as would I) in case there are more issues that surface.
She gets preferential seating, she has a weighted Lap-buddy kitty-cat that the school provides to help stop her wiggles. With her paralyzed vocal cord, this allows the teacher to better hear her.
We had a doctor appointment today with a plastic surgeon to talk about correcting her gtube stoma site. He gave us 2 options to put her under a General now or wait until she is 10 and can sit still enough to do it under a local. As she is once again sick, I’m opting to wait until she’s older, it’s just cosmetic at this point, no need to rush, she’s not trying to impress anyone in a bikini yet!
And to think that this is one of our biggest decisions, that basically it’s for such a minor thing. She’s really doing well.
What I find most amazing of all is how many people tell me all the time how amazing, special and incredible Kaitlyn is. Her therapists, her teachers, strangers, people I’ve just met. Everyone comments on the fact that she is one of the most amzing, engaging children they’ve ever met and that she has a very special energy about her.
I know what that energy is, it’s her sister looking over her and making sure she’s ok. Corinne, we miss you terribly, but we thank you with the bottom of our heart for hanging in there long enough for our wonderful Kaitlyn to be here with us today and for your special looking out for her all the time.
My love to both of my girls on this October 4, 2011.
I love you Kaitlyn my sweet girl from the bottom of my heart, you are the most special, incredible little girl and I'm so lucky to be your mama. I love you Miss Kaitlyn!
