Good news, Quinn came off oxygen yesterday and is doing really well on room air! phew, this means a big sigh of relief for us. I was really scared when he was getting worse and not better and the doctors were stumped also.
The "bad" news is that Quinn continues to be a very sleepy guy and isn't putting on weight. The thought is that trying to nipple/breast feed is just tiring him out even more. He'll take about 1/2 of his feed orally, then won't take anything the next feed or 2 in a row. He's still under his birth weight considerably. He is on fortified breast milk (which means a formula called Neosure is being added to my breast mik to make it more caloric) and the docs have now increased his feeds to 45mls (1.5 ounces) every 3 hours.
They put in an NG tube today :( (This is a nasal-gastric tube) that is taped to his cheek. Oh, boy is mom scared). Before this point they were putting in an OG (Oral Gastric) tube at every feed and would pull it out after the feed.
There are plusses and minuses to the NG tube being in place all the time.
the good- Quinn doesn't have to gag at every feed when the put the tube in (which is horrible)
the bad - the tube is in his esophagus which leaves the esophagus spinchter a bit open, which can lead to reflux (my opinion here) but I have a lot of experience on this subject!
We just want the little fella to start taking more of his bottles!
Until he does he won't be coming home to us, He'll be 2 weeks old this upcoming Monday.
Brian and I took a break from visiting him today. Kaitlyn misses us while we are gone every day. Brian is still having to drive me around (until Monday), nothing is getting done around the house (not that it matters, but...), and I'm pumping milk around the clock and need naps every day and it seems Quinn sleeps the whole time we are there anyway. It's back to that helpless feeling that there's nothing I can do at this point.
Thank you for all reaching out to me, I'm VERY VERY behind on answering emails/calls at this point - I hope you understand....
3PM update: as always nothing is ever status-quo in the NICU:
Quinn was put back on O2 (oxygen) at a very low amount, as he had some desats and is now going to be nippled only 1x per nurse shift (3x per day) as he continues to get too tuckered out.