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Wednesday, March 20, 2013

Where has Liz Been?

Hi, wonder if I have any blog readers out there any more....(please chime in if you are still around??)

First of apologies to all for going MIA for so long.  I've struggled with figuring out where to start again when so much has happened, and my serious lack of time just led me to not writing anything. 

So rather than doing a "recap" of the last few years, I'll just start in from now and hopefully I can start blogging regularly again.

My little former Micro Preemie is Skiing!  And she's skiing Black Diamond runs!

Here is a link to 2 recent videos of her skiing at Alpine Meadows .


and another one:



I just had Kaitlyn's 7 year old check up (yes she is 7.5 but who's counting) and i was hit with a lot of emotions as the two of us walked in hand-in-hand (albeit terrified she was going to get a shot, she gets a bit OCD of fears), thankfully, as we've already passed flu season (and had the flu in the fall) no shots, so she was all smiles after the nurse took her stats.

44 pounds and 47".  Wow. 

The entire "physical" was more of the doctor asking Kaitlyn about behavior type issues, do you wear your helmet, do you help do chores around the house, etc.  Wow.  We have come a LONG LONG way. 

In winter years past we still spent many times at the docs due to all of her lung issues, many times doing breathing treatments, and if you can believe it, Not one time this winter!  oh my!  amazing!

She eats like a champ.  she loves sushi and will always try new foods.  This from my little one who had a feeding tube until she was 4 years old. 

Yes (remember I said I'm not going to recap the last few years) she has been diagnosed with ADHD.  Yes, she can be really hard to parent at times when she gets the "sillys" as we call them.  Yes it's very very frustrating. esp when I compare her to other children and notice that she is definitely "different".  Team sports can be very difficult.  Basketball, oh my.  so very frustrating.  Hard to see her get the medal at the end of the season and have her be so bummed out that she said to me she didn't deserve the medal.  So sad when she was so excited going into it.  That's on me.  I feel terrible. Both of us try so hard to get her to try to pay attention, to understand the game.   she is playing with other girls her same age (or a year older) and they are soooo much more advanced than she is.   I wish I didn't get so frustrated when she is flighting about the court.

I cry all the time at sappy kid things.  I still have so many flashbacks when Kaitlyn is up on stage or something like that. I think of so many things:  Of not being a mom.  Of loosing her sister.  Of how sick she was. of not knowing what type of life she'd have.  Look at her now!  she is AMAZING!  and then the tears come...my friends expect it now from me, oh liz is crying again! 

  Quinn is 4.5 years old, he's an emotiaitonal little guy, but boy is he darn cute (and he knows it too!) Life is good,  crazy busy... We all have our health.  We've come a long way since 2005 when my story started on July 26 when my water broke.  (a date routed in my memory FOREVER). 

Short and sweet, but at least it's a post!



15 comments:

Anonymous said...

Thanks for the update. I love to hear about your daughter. She is very smart and she is not in the autism spectrum that you always had a fear of. Like many kids she has ADHD but you can control that with medicine and most ADHD kids are super smart and that really matters!

Anonymous said...

Thanks for posting this! I always keep checking, and both your kids are on my mind, so I love to hear these good stories. My own daughter, who is close in age to Kaitlyn, has many of the same issues, although she is not a preemie, so I can relate. I'm so glad you're back to blogging.

Anonymous said...

I quit blogging long ago and have stopped keeping up with micro preemie bloggers. My own former micro is almost seven. You are the only one left on my feed now. I'm glad to see you all doing so well. I always think of you guys when I'm up north.

Take care!

Anonymous said...

Glad to see an update and so glad that the children are doing well! I do check your blog occasionally for updates along with another than I became "attached" to lol!

Denitza Blagev said...

Hi Liz, I "met" you through SFPOM a few years ago and have recently started blogging and I find myself linking to your blog rather frequently. In some ways I think it is only natural that you have "moved on" so to speak and your dealing w/ the trauma of what you experienced with micro preemies is now not as defining. You are enjoying your children and having less to say on the topic can be viewed as a good thing. I also wanted to tell you that obviously your story affected me significantly as now I find myself referring to it and linking to your blog more than once! Great to see your kids have done so well. If you're curious, I think I link to you on my "Genetic Testing" piece on http://mybetterdoctor.com

Anonymous said...

I have checked in on your blog from time to time for the last few year. Great to hear an update from you! Keep them coming :)

Anonymous said...

I found your blog years ago while I was researching a writing project I was doing on prematurity. I've been following you ever since and stop by every once in a while to see what's been going on. So happy to see your post, and such a wonderful one at that! Glad that things are going well.

Anonymous said...

Hi...I am also a mom of an almost 3 yr. old micro-preemie. I am experiencing a lot of the "extreme preemie syndrome" behavior and wanted to know what happened with you and her education in school and if she was in special ed classes or if she ever had a diagnosis? Thanks for your time!

Anonymous said...

Glad to see you are still writing.

Anonymous said...

Thank you Liz for sharing your story. I am a new mom of a 28-week preemie and I have learned a lot from your posts. I also was curious about the reason why Kaitlyn had to repeat her school year. Thanks again.

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Kim Baniya said...

I like to hear the positive side of this ...i had a micro only 2 hours ..they didn't help her said she wud not live took pics and that was it ...she was my first ..23 weaker and it's been almost 8 yrs ...i still think too how she wud be today ...i wanna raise awareness on why I delivered early ...so that the cost is not so bad to diagnose out conditions ...we are the number one cause to second tri deliveries and ...we have to lose our first to find out and be treated ...i have an incompetent cervix ...i really wish this was not the only way ...but i and so look for tips on 10/3 I delivered my son at approx 32 weeks due to pre clamp and there is one question like all others will he catch up will he have problems learning and soo on ...he got down to 2 lbs 5 oz from 3 lbs 4 oz ...it's soo strange I have a four yr old I started to go into labor at 23 weeks with my stich and had other things happen but we made it to 28 weeks healthy 5 lbs 13 oz ...but him I was perfect I had dent even efface yet and then pow hospital 9 day and 2 day of labor emergency c section he was here 11 days in the hospital for me total for him 37 days I know that's not a long time to a lot of ppl ...but it was just soo strange ...well any who thx for sharing ur story it is a beautiful one ..bless u and ur family

Kim Baniya said...

Sorry spell check ..and my four year old made it to 38 weeks

janet grissom said...

So glad I ran across your blog. I am the grandmother of a micro preemie born 1.1 oz on 7-11-05, so just a couple of weeks older than your little girl. I am trying to do research as our little Jack is experiencing alot of reading difficulties. He is in 2nd grade (was held back in K) and is only reading on a K level and that with difficulty. This is a hard thing for all of us to realize, as we kept thinking he would catch up. I started wearing contact lense a few months ago ( had ROP) and had hoped that would help with his focus. Thankfully he was a pretty healthy baby in NICU, and has been extremely healthy as a child. Has been on meds for ADHD for a couple of years. This is especially hard for a grandmother to deal with because I don't have near the imput I would like :-) Thanks for letting me vent.

Vannessa said...

Still reading, love to hear updates.