I'd love to know:
- Your name (first name only is ok if you don't want to leave your whole name)
- Where you are from
- How you found my story
- How long you have been reading it
- Any comments you have for a "grown up Kaitlyn"
My entire written story will be saved for Kaitlyn to read when she grows older and I'd really love for her to know how many people have been praying for her and routing her on.
Thank you for your continued support - it really means the world to me and has helped me through many a dark day.
96 comments:
Malinda
Muncie,Indiana
Through The Micro Twins
For a while not sure how long.
Just don't grow up to fast and always remember the ones that took care of you and love you.
Name: IME
From: Michigan
How I Found It: You left a comment on my (then bedrest) blog, having found it through my comment on another blog we both read. I checked out your story and have been following along ever since. :)
How Long: Hmmm, approximately 8 months?
Comments: Kaitlyn, your parents love you more than you could possibly know. May you one day experience that same love for your own children.
Hi Liz!
My name is Melissa and I am from Ontario, Canada. I found your blog through a comment you left on a friends blog for her micro preemie. I have been reading for about 5 months and to a grown Kaitlyn I would say, you are truly a miracle and I hope you cerish every minute of life because god clearly has big plans for you.
Name: Kim
Location: U.S.
How I Found You: I think from a comment that you left on Hallie Grace's blog. I clicked the link over to your story and actually went back and read ALL the archives (which took me forever--had a window open on my computer for a couple of weeks). I was amazed then (and continue to be) by the love and dedication you have for Kaitlyn and by the amount of fight and vigor in your little one.
To Kaitlyn: You are truly one of God's amazing miracles. You have already proven that, when you set your mind to something, you are going to see it through. Keep that mindset and you can achieve anything (especially with the support of your devoted parents!).
Liz,
You know I read your blog daily and include K in our nightly prayers!
Name: Jennifer Delp
From: Washington (state)
How i found it: through holland and eden's website ( found their link on lucas and austin's website).
How long: since May 2006
Comment: Keep u pthe good work Kaitlyn! and happy New year! you are in my prayers :)
Hi Kaitlyn!! This is Melissa from Anaheim,CA. I found your blog from when your mom was on the PPROM website.We have been reading your blog for about a year and a half now I think. Pretty much from the begining of this scary and wild adventure.
My best advice you Kaitlyn would be
just to Love your mommy so so much. She has done so so so much for you and loves you till no end and would move mountains for you. You are such a lucky little girl to have such a strong loving mother and thank God because it has made you strong as wll and you are a true fighter. lots of hugs and kisses.
Hi McCarthy Family! This is Hechung from Orange County, CA. I don't quite remember how I found out about your blog. I think one of our friends may have directed us here, or I may have found you through Halle Grace's or Holland & Eden's blogs. I know I somehow discovered the three of your blogs at about the same time. It gave me so much hope to read all of your stories when we were going through our own NICU days. I have been reading your blog since about mid to late April of 2006.
Kaitlyn,
Where has the time gone? You are all grown up now and are so beautiful, funny and smart! Let me tell you, you were such a strong and amazing baby! You brought us many smiles and gave many of us out here in blogland a lot of hope too. Like other micro-preemies, you've endured a lot, but now you don't remember the difficult times, and it's helped make you the tough cookie you are today. I've been keeping you in my prayers. You have been blessed with wonderful parents and I'm certain you love them with all of your heart. It's obvious that you have been surrounded with much love and tenderness.
XOXO
Sammi K
Location: Gauteng South Africa
How Long: Quiet some time, cant really remember.
How I found It: From Holland and Eden site, just clicked on your link and have been hooked ever since.
Children are a gift from God
Anita T
Bronson, FL
I found your site through the National Twins Club Newsletter sometime last summer. I went back and also read from the beginning. Your courage is outstanding. Your love for Kaitlyn is so obvious and she is lucky to have such a wonderful mom. Parenting is never easy and you have it extra hard, but you have so much strength and determination that I am sure you and your family will do great.
Kaitlyn-you are a beautiful girl and you are in our thoughts and prayers.
*Shana W.
**NW Ohio
***Clicked in from another blog. I read Kellie's Blog (Eli) since she was on the Sept 05'expecting board on I Village.
****My oldest son was a preemie and had PDA. (thank God he was only 4 weeks early) The strength you and all Micro preemie parents have amaze me. And the will and determination of you miracle children leave me in awe. Just keep in mind that God doesn’t put more on us then we can handle. I am sure you doubt that from time to time, but I knew it is true. Your Kaitlyn has a special purpose in life. And through your blog she may already have started fulfilling it. :-)
*******For I know the plan I have for you," declares the LORD, "plans to prosper you and not to harm you, plans to give you hope and a future. Jeremiah 28:11
Name: Sarah
Location: U.S.
How I found it: Through Holland & Eden's site
How Long: soon after I had my twins at 25 & 26 weeks (sometime in early 2006)
Comments: Kaitlyn, what a miracle you are! I hope you will know that you are loved by many people who've never even met you. You have defied the odds from the moment you were born, and I am sure you will do wonderful and amazing things in your life. I wish for you a long and healthy life filled with all the love your heart can hold!
Hi! I'm Brenda from VA. I found your blog through another premie blog (not sure which one). I have followed your family faithfully since last August. You have a beautiful daughter and I get excited when I read of her progress. We wish you and your family the very best with many new "advancements" this year!!
Name: Uncle Gary
From: Los Angeles
How I found it: Umm, I helped write bits of it early on
How long: From day 1
Kaitlyn, you've had a long road, but you're constantly amazing us with your progress. When you encounter all the little trials and tribulations in life, you can laugh them off and say "Hey, I made it through much harder stuff growing up, this is a piece of cake!"
Hi Kaitlyn! I am Billie from Michigan, mom to micro preemie twins Holland and Eden.
I found your blog after your mom left a comment on our blog, and have been a faithful reader and fan since. I can't remember exactly how long it has been... It was probably a few weeks after you were born and I took time to catch up on all the archived posts so I have read everything since the beginning.
We took a vacation to California this past summer, and were lucky enough to be able to meet you and your parents in person. Even though we have met under stressful circumstances, I am so glad for the friendship and support that your mom has given me over the past year. I know that she has been a great source of support to many, many people who are on this preemie journey with us, as well as others who have lost a preemie or a twin.
I wish you love and laughter in the coming years. May you experience all the joy, hope, and strength that you have brought to others!
Name: Nancy
From: Spragueville, Iowa
How I found your website: I'm not real sure but I think it was from Holland and Eden's website.
How long reading: Probably 6 months or so.
Comment: Kaitlyn, you and Corinne are true miracles from God. Always remember to trust and lean on Him and He and Corinne will lead the way.
Susan
Minneapolis, MN
Through the Micropreemie Twins
8 months?
I actually have a suggestion you may not have tried that may help reduce the vomiting (you've probably tried everything- but I don't recall you saying anything about this so I'm mentioning it now)- my daughter vomited several times daily the first few weeks of her life until I figured out that she had an intolerance to dairy- even if I ate dairy, she vomited. Once I quit, she was fine. They make formula that has the dairy predigested (Nutrimagen, I think it is called, or another one is Alimentum). We haven't used it but I know others that have with success. Of course my daughter is not a preemie nor has had any of the problems sweet Kaitlyn has, but I wanted to make sure you were aware of that possibility.
Happy 2007!
I'm Gigi, a Navy Wife currently in Pearl Harbor, HI, but from MI.
I've been reading on and off since March. I was in the hospital myself with pregnancy related complicatins this summer and couldn't keep up.
I found you by surfing thru some preemie blogs I read daily.
My first baby, my son Felix (who is 30 months now), was born 4 weeks early with IUGR and we had some issues and found the answers from a very loving community of other preemie Moms.
This summer I was faced with the question of having an amnio myself and due to the info you posted on your blog I refused it.
However, nothing could stop the HELLP Syndrome taking over my body and my daughter Mae Elizabeth was born at 29 weeks 2 days weighing 2 pounds 6 ounces.
She only stayed in the NICU for 40 days and sometimes I feel guilty that I 'got off' so easy and not a dang thing was ever really wrong with her. But I am blessed.
I think the most important thing Kaitlyn should know when she's grown is how strong and hard her Momma fought for her and how much she is loved and cherished, every single day. Even through the hard times and rough patches. Especially through the rough patches !!
name: Kellie
Where you are from: Ohio
How you found my story: You either left a comment on Eli and Carson's blog or I found you through Halle or Holland an Eden's blogs.
How long you have been reading it: Some time now, I would say at least since last spring.
Any comments you have for a "grown up Kaitlyn": You are growing into such a strong and courageous little toddler Kaitlyn. Both your Mommy and Daddy would do anything for you and it shows through everyday. One day the vomiting will stop and the smiles will come all the time. Keep moving ahead and amazing those around you because that is what you do best.
Name: Lily
From: Texas
How I Found You: Either through Halle Grace or Halland and Eden's site.
How long: 5 months or so? When I found this site I read all the archives to get caught up from the beginning. I have g/g twins that were 33 weekers and spent a month in the NICU.
Name: Michelle
From: Oregon
How I found you: From some other preemie's blog. I think Holland & Eden's maybe.
How long: I've been reading since summer of 2006
To a grown up Kaityln: I know you will accomplish some great things in life! God has given you a wonderful spirit and has blessed you with two very wonderful parents! When you read this story your mama has told of you and your sister Corrine, I hope that you will realize how much of a true miracle you are, and just how much your parents REALLY LOVE you!!! Also that in doing so your mother has helped and inspired so many other parents that have been faced with the same experiences with their babies. You are so blessed!
Maren DeGraff
San Rafael, CA
Holland & Eden's blogs
6 months?
Kaitlyn, There is so much that I am amazed by from reading your family's story. Your mother's stregnth is ceartinly one of those things, but so is yours. I hope 2007 is (was, by the time you read this) a wonderful year for all of you.
Hi Liz,
I found your site through one day while looking for sites on Micro Preemies. Holland and Eden's site came up and then your was a link through there.
I have been checking up on Kaitlyn for about 8 months now and I am so excited about her progress.
My son was born at 24 weeks weighing 675 grams. He is the light of our lives and like you we are so proud of him we blog/brag regularly.
Enjoy Kaitlyn, she is amazing. These babies need that extra bit of us, but they give far more back.
Good Luck in 2007
Hi Liz,
I'm Abby. We're from Philadelphia, PA
How I found it: I think you found me, if I am not mistaken...
How Long: Since June 2006, when Sharon went into preterm labor
Comments: Kaitlyn is a very lucky girl to have a mom who blogs so well. This will constitute an important legacy. It will help remind you (and all of us) where you've been, how far you've come, and how important it is that Corinne is watching out over you.
Your name : Gala
Where you are from : Kansas
How you found my story : probably through your comment or link to your blog on some other blog. Don't remember now for sure.
How long you have been reading it : 6 months or so
Any comments you have for a "grown up Kaitlyn": Your mom and dad are VERY PROUD of you.
Hi Liz,
My name is Andrea and I also live in San Rafael. I actually met you at an open house a couple of years ago and have been receiving your real estate newsletter since then. In one of your newsletters you included a link to your blog, and I've been reading your story faithfully ever since. At this point I feel like I sort of know you and your family!
Your strength, courage, and dedication to your baby is amazing. Kaitlyn has made such wonderful progress! I have every confidence that Kaitlyn will grow up to be a healthy, strong girl, and that these struggles you have been going through will be no more than a memory.
Your name: Anne
Where you are from: MA
How you found my story: Fellow PROM mom, and kanalan.com member.
How long you have been reading it: since you created it
Any comments you have for a "grown up Kaitlyn": Kaitlyn, you are loved so much. Your mommy and daddy sacrificed so much to help you get to where you are now. People all over the country, possibly all over the world have prayed for you. You are destined for greatness.
Hi Kaitlyn
My name is Beth and I am in Canada. I found your blog through a coworker's blog who also has a preemie.
I know what it is like to be sick but not what it is like to be sick and a wee baby. I think you and your folks are courageous and it is a privilege to read it from your mom.
I send you love and best wishes for your future as you grow up into Super Kaitlyn, warrior princess!
Hi Liz & Kaitlyn!
My name is Andi & I'm from FL. I found your blog on the March of Dimes site..i think..& have been following it almost daily since April 2006 when I delivered my 26 week preemie. She weighed 1 lb 6oz. She is doing wonderfully now but we went through very tough times & reading your archives ( I read everything during our l-o-n-g NICU nights!!) really helped me to get through it. Your story is an amazing one. I wish things were different for you, but you must know how many people you, Liz, Kaitlyn & Corrine have helped & continue to help. Things happen for a reason even if we don't quite understand it. Your family is in my thoughts & prayers every day.
I was so excited the day that little Miss Kaitlyn decided to finally smile at you, the pictures brought tears to my eyes (not the first that I've shed from your story!) I am confident that things will start looking up for you with the vomiting soon... just look at how much progress Kaitlyn has made! She is truly a miracle & you are incredible parents! I don't know how you do it! You are an inspiration to so many!
To Kaitlyn, be good to your Momma! She loves you more than you will ever know! You are a wonderful person who was put on this earth for a reason. You have already accomplished so much!I can't wait to see what is in store for you!!
Hi. My name is Andrea. I am originally from California, San Jose in fact, but am currently living in China. I have always had an interest in being a preemie nurse, and decided, when I found Holland and Eden's site, to search for other micro preemie blog sites, and that is how I found Kaitlyn's. I just recently found it, and have gone back and read all of your post. Seeing as I am not a parent, I don't know what information I would give Kaitlyn except to write everything down that goes on in your life, and to remember it (or at least the good things!)
Good luck on the rest of your journey through life!
Name: Andrea
From: Rochester, NY
not sure how I found it, but I think through another preemie blog when I started looking around after my daughter was born 5 and a half weeks early (she, fortunately, only spent 2 weeks in the NICU for RDS)
I have been reading for a few weeks, but read the archives
To Kaitlyn: you are truly a miracle and a blessing to your parents. I look forward to watching you grow up!
Name: Lori
From: San Jose, CA
How I found your story: I had preemie clothes listed on Craigslist back in October of 2005. You had contacted me with an interest in them, and your link was attached. My older daughter is a Kaitlyn, and my younger daughter was a preemie. I was so moved by your blog, I shipped the clothes to you. We even saw your Kaitlyn wearing one of the outfits in a photo you posted! Since then, I log on periodically to check on your little angel's progress.
For "grown up" Kaitlyn: I wish you health, and happiness. May you always remember how much you are loved and cared about; even by those you cannot see or may not meet. You are truly a courageous, beautiful, strong, and special little girl!
For Liz & Brian: Hang in there! Your love; devotion; and faith will get you through each of "life's obstacles." When you have tough days remember: Tomorrow is a new day, and hopefully things will become better and/or easier. You are both loved and cared about too!
Michelle
Minneapolis, Minnesota
I don't remember how I found it. I might have been searching for preemie blogs on blogger. Your site is one of the few that is well written.
I'm not sure how long I've been reading it.
Kaitlyn, you and your family have been through a lot of stress and pain. We have no idea what your life will be like when you're grown. Although these struggles that are blogged about here are so very real and painful, they will pass. And when they pass, they will leave behind your beautiful family, happier, stronger, and more fully present and grateful than they were before. I have a preemie too. Her name is Alicia. She was born at 26 weeks at 1lb 9oz. I feel like she suffered for my benefit, because it's made me, the mama, a different person. Kaitlyn, thank you for all you have given to your parents, not just the smiles and growth and progress, but all the trouble you've gone through as well.
Stephanie C.
I am from Dallas Tx
I found your blog while searching for info on Acrania (my baby passed away from it)
Probably almost a year now
As I am sure you have been told this before but just remember that Corrine is always with you and you can always confide in her. If you ever feel lost, just know that she will help guide you and that you because you are a twin, are never alone!
JoDee
Michigan
Linked from another blog
Reading for quite a while not sure how long
Kaitlyn you are one amazing little girl and have accomlished so much you have the whole word is ahead of you to take by storm as I am sure you will continue to do
Hi Liz, Brian & Miss K,
Name: Kristin & Presleigh & Rachel
How We Found You: I really don't recall, I believe it was a link from either Halle Grace, Holland & Eden or a search for something preemie related... It was too long ago.
Reading for How Long: Umm April or May of 2006.
To Miss K when she's all grown up:
I come here every day (just about) and read about your milestones (forwards and backwards) and read what your mom and dad do to give you the best of everything and it gives me inspiration. Always believe in yourself and how strong you were and that you can face anything head on. After all of the challenges you have faced so far in life, there isn't anything you can't do.
Name: Amanda
From: Maine
I found your blog through Holland and Eden's site. I have probably followed for the last 5 months or so.
Kaitlyn,
You've come a long way baby! Keep on going! You are a miracle and a fighter. Think of all you have been through and how far you have come. You can accomplish anything.
Thank you for sharing your story with me!
Name: Stephanie Nelson
From: Corte Madera
How I found it: Through MPOMC
How long: Since you were pregnant on bed-rest
Comments: I feel as if I know you and Brian and Kaitlyn even though we've only emailed a few times (to arrange a visit while you were on bedrest) and met once at the last garage sale. You are such an inspiration, and I think of you and your family often. Kaitlyn is such a cutie and you seem like incredible parents - she is so lucky to have you.
Tammy
Lubbock, TX
don't recall
about 8 mths?
You are a tremendous blessing and your mom is an incredible inspiration to many.
Beth
Maine
Through the link in your signature line from prom list.
I have been reading your blog since you were still carrying the girls.
Kaitlyn, you have an inborn strength that you have only just begun to show. It's only natural, look at the strength of your mommy and daddy.
Amber
Lansing, MI
The Kanalen Prom Email List
Not sure how long I've been reading it, maybe 8 months. I pray for Kaitlyn and your family all the time. I love to see/hear how she is doing.
Kaitlyn, you have amazing parents who love you very much. You obviously have an amazing spirit which I hope you keep with you always.
Name: Terra Carmichael
City: San Francisco
How you found my story: SFPOM Club
How long you have been reading it: Just started today 1/8, but will be reading for a while!
Any comments you have for a "grown up Kaitlyn": Stay positive and see the fun in life. Oh, and remember how lucky we all are to be here. (you can check Quinn & Cooper's blog out at http://www.bloggingboys.com)
Name: Jeana Diddie
From: Conyers, GA
How I found your blog: You left a comment on one of my friends blogs (preemiehood). Out of curiousity I clicked on your name which took me to your blog. I was hooked!
To Kaitlyn: Although I don't know your parents personally, I can honestly say that they are some of the strongest, most loving parents. They are so lucky to have you and you are so lucky to have them. I've loved reading about your progress especially about the smiles that your Mom waited so long for.
Hi Liz and Kaitlyn! My name is Katie, and I am from New Orleans, LA. When I was pregnant (with my daughter who is now about 3 months old), I was interested in prematurity and did some googling to read up on it. I believe that's how I found your blog, as well as Holland and Eden's. I've been reading for maybe 6 months or so. My comments for Kaitlyn: Kaitlyn, your parents love you to the moon and back. You're going to grow up to be a strong, healthy, and happy girl. Give your momma lots of hugs.
Liz: Hang in there! You're a GREAT mom. Definitely an inspiration to us other moms!!!
Hi Katlyn,
We love you and can't wait to hear more about your amazing accomplishments.
love,
Aunt Elissa, Uncle Mike, and Cousin Stella
Your name: Jennifer Sprague
Where you are from: Vienna, VA
How you found my story: An email sent to a Slightly Crunchy yahoo group I am apart of.
How long you have been reading it: I just found it today.
Any comments you have for a "grown up Kaitlyn": I am nto sure I can comment - I am not sure I am worthy - I will just say that I am very sorry for your loss, I will pray for both your little girls, Many blessings -
Sara
Pipestone, MN
I was linked to Kaitlyn from Holland and Eden, I found them from Katia Solomon.
I think I've been following Kaitlyn for about 6 months now, but have read all the old entries on this site over time!
Kaitlyn-You are definitely a miracle! Always remember all the people praying for you, even many that have never met you or your family! You are so strong and I admire you and your parents so much! You are one lucky girl to have the mom and dad that you do!
Molly
From San francisco
My daughters were roommates of Kaitlyn's in the transitional NICU for a few weeks.
I started reading a few weeks after we left the NICU.
To Kaitlyn: Kaitlyn, you were always the most stylish baby in the NICU (I think you have your mother to thank). I hope you know that you are the very special kind of twin--the kind who has an angel sister watching over her at all times. You have the most amazing and dedicated parents I have ever seen.
Your name: Lisa Jansta
Where you are from: Sacramento, now living in OC
How you found my story: By your mommy's posting on the PROM site.
How long you have been reading it: I've been reading from Day 1. My husband Mike and I visited you when you were still in your mommy's belly!
Any comments you have for a "grown up Kaitlyn": You are loved by so many people. So many people have prayed for you and your sister. We're so proud of you.
Chi Soo
San Francisco, CA
We heard about your story through an SF mommy's email list and would like to help by donating breast milk. Kaityln- there are so many people who are thinking of you and your parents. They love you so much!
Hi,
My name is Holly. I live in CT. My sister is on the twin network in Marin, which is how I first heard about your story. My now 5yo son was PROM 29weeks gestation, born at 2lb 13oz. I guess I was drawn to your story initially because of that. I continue to follow along, mostly for the joy of seeing Kaitlyn prevail and thrive despite all the obstacles she's faced so early in life. She's a trooper, as are you and your husband!
Hello:
I'm Kelly and I live in Canada. I linked to this blog from Holland and Eden. I was reading birth stories one day when I stumbled upon Holland and Eden's blog. That was the first time I realized that babies born at such an early gestation could survive and I was in awe and have been reading ever since. What a special little miracle your little girl is - she's wonderful.
All the best.
Your name (first name only is ok if you don't want to leave your whole name)
Tammy
Where you are from
Florida
How you found my story
I read your post on Ovusoft message boards a long time ago. You had your retrieval and transfer on the same date as me, but a year later. I had mine in April 2004. It led me to your blog. I was so interested to see how your little girl was doing that I read your blog every now and then.
How long you have been reading it
About a year and a half
Any comments you have for a "grown up Kaitlyn
You have a wonderful mother that cares a lot for you, and you are such a cute baby girl.
She truly is adorable.
Name: Maggie
From: CT
How I Found It: A link from Halle Grace's blog.
How long ago? About 10 months ago
Comments for Kaitlyn: I hope someday when you are an adult you will understand the depth of your parents' love for both you and your sister. Someday you'll look back at your early journey and smile in amazement of the number of people who followed your progress!
Liz-hard to imagine what you've been through.
Ginni
Gretchen
Corte madera
I met Liz online through MPOMC
Six or seven months.
I am delighted and amazed at what a mobile, energetic toddler you are. I hope you continue to grow and explore and enjoy your world.
My name is Kelly and my Micro Preemies are Collin and Cyrus.
We are from Dallas/Fort Worth, Texas
I found your blog through the Holland and Eden blogroll.
Kaitlyn, you may never know just how amazing you are, but I am sure you will know how loved you are. Remember how special life is and that your being on this Earth is a gift, so live it to the fullest and always do what makes you happy!
Hi Liz and Kaitlyn,
My name is Casey and I am the proud mother of triplet daughters, 17 months. We live in Rancho Murieta, CA and I belong to a mothers of multiples group here. Your emial regarding breastmilk for Kaitlyn circulated among our group awhile back. After reading your story, I wished I was still pumping so that I could donate myself. My girls were born at just 25 weeks, 1 day gestation....so we had a LONG NICU stay in 2005. I recently started a blog. Come visit us at www.quilaotriplets.blogspot.com
I will being checking back for updates regrading Kaitlyn's progress.
Best of luck,
Casey
Hello Liz and Caitlin,
My name is Julie, I am from Appleton Wisconsin. I found your blog listed on the blog of another little miracle that I read about. Today is my first visit here. I am writing a book about my little micro preemies, and this year I have pledged to read one new blog each day about all these miracle children out there. I hope that my book will allow new parents of preemies to know that they are not alone in this world. I have not yet decided how I will commemorate this pledge, but some how I would like to at the very least mention all the wonderful angels I have read about.
To Caitlin, specifically, I hope that you know how loved you are and just how special you are. Your strong will and determination to be here with your family will carry you far in life.
Name: Dan (and Andrea and Nik and Nate)
From: Ontario Canada
How I found you: Did a search for preemies and you came up. I was touched by your story, so much sounds familiar.
I am new to blogging, I did a "baby Update" email but thought this is easier/better.
How long: Found it just today
Comments: They keep saying that life with a preemie is a rollercoaster of emotion; the highs, the lows, the loops. Just make sure you buy the picture at the end of the ride so that later, when you are talking to your child before she graduates, you can show here how truly scared you were, and how happy you are that she is there. Oh, and how she better clean up her room NOW!!!
Nancy
Michigan
I found your blog through Eden and Holland's blog. I am Eden's hearing impaired teacher and was encouraged by Billie to read their site and noticed Kaitlyn's name. I am also the mother of a Kaitlyn Elizabeth (22 years old).
I have been reading your site since last summer and it's been fun to read about Kaitlyn's development.
PS....I was reading one of your links of Julie-Foster Mom and her site just stops, do you know what happen with her foster child, Sugar Bean?
Christie from New Jersey
I found your blog while doing a preemie blog search, one saturday in Febuary. I spend all day reading it from begining to the present..the sniffer at that time. Your blog is so detailed I couldnt put my laptop down, like a good book, it took all afternoon and evening. I am a nursing student, graduating soon. I have always wanted to be a NICU nurse, your story gives me reason to do what I want to do. I love keeping up with your blog and check weekly for new updates...keep'em coming! Well anywhoo I've been reading your blog for 2 months and my heart goes out to your family. People just do not know the work involved with a preemie, a you express it so well.
Kaitlyn..I send all my good wishes to your daily progress to overcome what you have been through in the past year and a half! Your doing great sweetie and at the pase that is working for you. KEEP UP THE GREAT WORK!
Bart from Montclair, NJ. I came upon your blog after googling 'nasal cannula in preemies'.
My wife and I are the proud parents of a 'twinless twin', Thomas James. He and his bother were born at 24 weeks and we lost William Kevin 5 days after he was born. Thomas is now in his 8th week and weighs in at 2lbs 3oz. He is doing remarkably well but we are aware of the MANY obstacles ahead.
Being that we are in the early stages of this experience, reading Kaitlyn's story is very familiar. I'm sure she is as much an inspiration to you as our Thomas 'The Train' is to us.
To Kaitlyn: You are a beautiful gift to your parents and this world!
1. Sarah Key Storrs
2. Kittitas, WA
3. Via the Blendarized Diet List
4. First time a few months ago, 2nd time this past week.
5. Next to my son Evan, I don't think there has been a baby loved as much as you Kaitlyn! If love = touching stories shared on this blog, well then you are the most-loved baby on the planet!
Heidi, from Southern California.
I found your story from a friend's blog, to another friend's blog and so on. Sometimes I just spend time clicking on links that people put on their blogs. Somehow I found yours and I have been praying for you and Kaitlyn ever since.
Actually I found your blog not too long before I had my son this past December. After having him I wasn't really able to sit and read other blogs anymore, until a few days ago.
I was AMAZED at Kaitlyn's progress. I cried many tears when I first read your story and I have prayed for you all. I am so happy for the progress your daughter has made and I will continue to pray that she continues her daily growth and progress!
I think of you often and pray for you, too!
1.Brandy
2.Shawnee,Oklahoma
3.I found you from another Micro preemie site although at this point I don't remember which one. I read a lot.
4.I've been reading for about 6 months or so.
5.I'm a mom to twin boys born at 30weeks. I admire your strength, you may not know it yet but you have lots of it and determination to get as far as you have.I am amazed each day at my own kids achievements much less you who have beat most odds. God Bless.
1. Emily
2. Sydney Australia
3. Through another premmie blog
4. Approx 6 months.
5. Your parents obviously love and adore you. May your life always be filled with love, laughter and happiness.
1. Chantal
2. Ontario, Canada (the GTA)
3. Most likely linked from another preemie blog, but I don't remember which one
4. Very close to a year now
5. Kaitlyn, you have the world at your feet. Your determination and willpower will take you where ever you need to go. Never forget that your parents love you. You are a miracle!
1.Meredith - My twin sister and I were preemies.
2. Minneapolis, Minnesota
3. Through a friends preemie blog.
4. About 8 months or so.
5. Always remember how lucky you are to have such deveoted parents.
My name is Anna, and found you through the network of preemie blogs.
I am in Connecticut, and have been reading since summer 2006 when my own preemie arrived.
Kaitlyn,
You are the luckiest girl in the world to be born to such wonderful, supportive parents, and they are the luckiest parents anywhere to have such a strong, determined girl on their hands. Love the smiles!!
Makes me get all teary!
My name is Kelly and I'm from Ontario, Canada. I found your blog through Holland and Eden's. I've been checking in on your little Kaitlyn now for about 6 months. She truly is a little miracle and so lucky to have such a wonderful mom and dad. She's also a cutie pie.
Hi, I'm Jenny from Ohio and I found your blog through Holland and Eden's. Someone that links to my blog also links to Holland and Eden's so that is how I eventually found little Miss Katilyn!
She is a beautiful little girl and is so lucky to such a wonderful Mom. I have been reading for a couple of weeks now, trying to go through the archives.
I would tell Katilyn that she can do whatever she puts her mind to! This world is full of amazing opportunity if you just believe in yourself.
Hi I'm Liz from Texas and I am also married to a fire fighter, although the similarities soon end, I am a teacher, not in real estate.
My son was born at 23 weeks, he also has a feeding tube and it looks from the pics like your daughter has vision problems, my son has ROP Stage 4 and has glasses but will not wear them, I'm wondering how you got Kaitlyn to wear them, is there a trick? We're having a very difficult time with that. I found your site from Holland and Eden's site - which I read regularly and got that one from a friend. Anyhow, I'd love to know your secret with the glasses, we're at a loss.
Liz
lizandscott02@yahoo.com
btw, we went to Costa Rica for our honeymoon too. It was the ecotourism that drove us there.
Liz
lizandscott02@yahoo.com
btw, we went to Costa Rica for our honeymoon too. It was the ecotourism that drove us there.
Liz
lizandscott02@yahoo.com
Hi, I found your blog on the preemie blog site through yahoo. I too have micro preemie twin girls, Lena and Kassie. K is jsut a bit older than my girls, you are part of our inspiration. Come visit us at www.bitsandpiecesofme.com
1. Sheri.
2. Milwaukee WI
3. Through another blog
4. About 1 week
I am especially drawn to your feeding issues....though we have avoided the tube feedings- barely (thus the feeding difficulties not quite as severe as in your experiences) My son has had problems almost from day one and its been the hardest thing I have ever had to deal with ....We are making progress, but some days I just want to cry- I appreciate the video and may use it myself sometime to show and "educate" others....We currently have an apt at a multi-disciplinary approah clinic mid October(there is such a long wait)...We were getting ST/feeding therapy 1 time per week, but have moved and are in the process of evals here.... I will pray that your insurance covers it!!! They can be sooo incredibly ridiculous!!! Thanks for sharing your story.....
Blessings!
1. Your name: Danielle
2. Where you are from: Iowa originally
3. How you found my story: through mythreewisemans.
4. How long you have been reading it: I just found you today.
5. Any comments you have for a "grown up Kaitlyn": You are a true miracle and such a blessing to your parents!
1. Your name: Andrea
2. Where you are from: Texas
3. How you found my story: through Holland and Eden
4. How long you have been reading it: cant remember maybe 6 months
5. Any comments you have for a "grown up Kaitlyn": You can do and be anything you want,you are truly a little miracle. Your parents are blessed to have such a sweet daughter.
M from Seattle. Someone close to me has a now month old micropreemie. I googled "preemie success stories" and found your blog. Lovely sweet, thank you for the updates. I've been reading the older entries for a month now. Please continue to keep the blog up - for the encouragement of others. You can speak from experience, and that powerful testimony moves people in a very good way.
Hi! I'm rita from WV. I found your blog by roaming from blog to blog to blog during my lunch time at work. Your story is so touching. I've gone back to the beginning and am reading it through as I have time. You're an amazing woman and mother, and you're so fortunate to have the support of a wonderful man.
I'm a Special Ed teaching assistant in a high school; this is my 25th year.
Hi, i tried to email you but it didnt seem to work, as i probably have too much to say in a comment! Your blog has had me crying for the past half hour, and ive only read the first 4 months. I want to say well done, you are a strong and wonderful mother. Im sad and happy for u!
I am currently pregnant with twins. What is so crazy is that we were originally expecting to deliver around 4th Jan, and our stories seem so similar, except i am only at the start of this journey! Twin B passed away at 17 weeks. Ive been on bedrest ever since with weekly progesterone shots. I went into preterm labour at that time and have been admitted to hospital twice with awful contractions. I was diagnosed with pre-eclampsia. One of my waters broke (PROM) at 23 weeks. I am now 28 weeks pregnant, and surviving Baby A has IGUR and is approx 1lb 10oz. Due to the pre-eclampsia i am scheduled a c-section on 2nd Nov (less than 2 weeks away) and i am praying we can hold out till then!
Its been good to see what i have to expect, scary but also reassuring. With only one twin left i just dont know what i will do if anything bad happens to him, developmentally he is around 28 weeks, but weighs only that of a 25 weeker and i am so scared!
If you had any advice for me that would be wonderful.
Btw, you have such a beautiful family :) i hope in 2 years time i will again be in a similar situation with that happy outcome.
Thoughts and hugs,
x me and the twins x
My name is Jennifer and I am from the St. Paul area in Minnesota. I found the website two ways - searching for information on micro-preemies after my life-long friend had her daughter at 24 wks/1 lb 2 oz, and then linked on through the Holland/Eden site. Then I came back later when searching for information on a paralyzed vocal cord (which, like Kaitlyn, her daughter has). So, I've been checking in off and on for about 9 months, I think. I sometimes feel like I'm invading your privacy, but I've actually learned quite a bit of helpful information. I've also been amazed by your family's daily life and struggles. I almost feel like I know you. Kaitlyn, you are a beautiful little girl who has a fighting spirit that will serve you well as you grow. You also have two wonderful, loving parents who will be there with you, if not physically, then in spirit, for your entire life. Cherish them always as they cherish you. Liz, thanks for the blog - sorry for the long posting.
1. Heather
2. Virginia
3. From another preemie site
4. 1 1/2 years
5. Be happy with your life
Hello,
My name is Melissa and I live in San Jose, California, not far at all from where you live! I was on-line reading about "John and Kate Plus Eight," and also about the "Ferrill Quints." I just kept reading all sorts of different things in the links I found. This is how I came upon your story.
I have two children, a 16-year-old girl and a boy that will soon be 11. I am very lucky to have two healthy children. My daughter was born about 3 1/2 weeks early and my son six weeks early. Both were five pounds and extremely healthy at birth, and went home right away. I can't imagine having a child born as early as some I've read about. They are truly miracles.
I just wanted to say that you are an inspiration to others. It must be so difficult and tiring for you so often. You are a dedicated parent (your husband is as well). Your daughter is beautiful and it's obvious she brings so much joy to your lives. I wish you the best in the new year and the continued growth of your sweet girl Kaitlyn in all aspects.
I will continue to check in on your website to see Kaitlyn's progress.
Thank you for sharing your story. I'm sure it is helping others who have been or are in the same situation you are.
Matt and Aline
Los Angeles
Google (Keyword search - "Preemie Blog")
Just found it today....but will continue to check back often!
We believe that preemies have special gifts, such as strong will and fortitude. Use them throughout life to your advantage and you will enjoy tremendous success!
1. Amy
2. Georgia
3. through your signature on OS
4. read the whole thing today (home with sick kiddos)
5. Any comments you have for a "grown up Kaitlyn"
You are a strong, beautiful little lady, and I'm sure you'll grow up to be great!
I just wanted to say hello and that your daughter is beautiful!
I became PG by IVF in Dec. 2006. I found out later I was PG with twins. We were so thrilled. We found out we were having a boy and a girl. Hailey and Anthony. At 20 weeks gestation Hailey passed away. We have no idea why this happened. Her heart just stopped beating. Anthony stayed inside me for 6 more weeks. I delivered my daughter on a tuesday and had Anthony on a saturday. He was in the NICU 91 days. Came home on oxygen and apnea monitor. He will be a year old on June 2nd and I am just so blessed to have him here with me. I just wanted to share my story with you and that I too know the pain of losing a child and yet celebrating the life of another.
Hi there,
I'm also a mom of a preemie and he is still in the hospital. My son Rafael was born when I was 26 weeks +6 days of pregnancy (2nd March).
He had all kind of complications: IVH grade 4 and BPD. Due to the IVH doctors have diagnosed hydrocefalus although the brain spinal liquid has room to circulate (as they said) and the head has not grown anymore. With respect to the BPD is getting much better, today he spent most of the day without any oxigen aid.
My husband and I have passed through many things this year: my mother died and also his, my child was born too early and all these complications, but God has been there accompanying us, loving us sustaining us.
Dear mommy, don't despair! God is there!
As you mentioned, your child is vomiting because the mucus makes her feel sick and she is unable herself to flush it out. The problem is not her stomach so don't give her those horrible medicines and treat her with something that will disolve the phlegm. Please, ask her doctor if she can take something like Mucosolvan or Bisolvon, they are fantastic "expectorant". When my daughter Marina has "non productive cough" the one which sounds a "dry" I give her this and help her cough the mucus out.
When she goes to sleep, put close to her bed a pot with hot water and eucaliptus leaves, this also help clearing the air ways.
Hope we can keep the contact to support each other, I have a web page in www.es.netlog.com/anavalj. Unfortunaltey, it is in spanish but you can see pictures of my child Rafael and may be somebody can translate the blogs for you as they tell his progress.
I send you a big hug and lots of good feeling and blesses.
Ana
Hi, I'm Colleen from Michigan and I just found your blog through a Google Blog Search for "preemie babies."
As a mother of 25/26 wk twin preemies, one surviving five days and the other one a big boy now at age 5, I can tell you that things really will get easier and someday you'll cruise blogs and remember so many trials that had initially been long forgotten!
Mom, I admire your courage and I wish you all the luck with your pregnancy. Keep growing big and strong Kaitlyn!
Hi, my name is Janelle
I am from Alberta, canada
I delivered triplets feb 1, 2008.
They were 26 weeks and 5 days.
The two girls spent 70 days in NICU and my little boy spent 74 days. They are absolute miracles. My daughter Caitlynn had a significant brain bleed but so far is doing just fine, she never had any surgeries for it. For all the mom's out there, hang in there. I have another daughter who will be 3 this summer(she was 35 weeker) and at the time when they were in NICU it was difficult, as I tried to be extremely involved with the babies care. We almost lost our other daughter athena(one of the triplets) early on due to hospital screw up, Thank god she's a fighter. Hang in there. I love to read other people's experiences. My biggest worry is how they will develop later on in l ife.
Good Luck!
Thanks again for the wealth of information and support you have put out there for other families struggling with feeding difficulties. I am praying for you and your family as you await the birth of your son.
-Colleen
El Dorado Hills, CA
Hi Liz,
My name is Kylie and I am from Brisbane Australia. I found your link yesterday while I googled about Lactose Intolerance and Neocate. I wish you all the very best with your next birth, I really do hope it is an enjoyable experience for you. I think you have endured far too much pain for one lifetime already. The most amazing feeling is that brother and sisterly love, there is nothing in the world like it. Make sure you have the video camera rolling when Kaitlyn walks in to see the little fella! Your story was amazing and you and Brian are a tower of strength for your children.
Best wishes,
Kylie
Liz and Family-
My name is Kirsten and I live in So. California. I have been reading your blog for about 18 months since my friend sent me the link. Though I know you did not ask for any of this you are doing an amazing job. Kaitlyn is lucky you are her mom. What a fantastic advocate you are for her. I was so hoping that things would be "perfect" with Quinn and he could just go straight home with you. You are in my prayers. Stay strong!
Best wishes,
Kirsten
Mom to 3 boys a 5 year old, and 3 year old twins.
I'm late onthis but...
I'm Elise Sambrano from RVMC. I found this about 2 months ago, after you posted something to the roup and I noticed your email signature. I'm catching up as I can, I started at the beginning.
I am so proud of Kaitlyn and the progress she made through the beginning of 2007. You're a wonderful big girl Kaitlyn, and you're going to get stronger every day.
Hugs,
E.
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