Wednesday, April 05, 2006

Some changes...but cross your fingers....things are improving

Well, real quickly, as blogger is having an outage in a few minutes, but:

-We have discontinued Reglan yesterday (a reflux drug) with no bad effects (we didn't think it was doing anything anyways).

-We stopped adding formula fortifier the last 2 days and vomiting seems to have decreased

-We did our first night of "continuous" feeds for 8 hours and we had no vomiting

-Otherwise we are pumping 130 cc's over an hour 6 times a day (except for the 2 times last night where we pumped in 260 over 7 hours while we all slept). Although Bri and I didnt' sleep much, as were were on vomit alert. I think this will help when Brian leaves tomorrow to attend his grandfather's funeral and I will be alone (except for wonderful nurse Rosa coming to help)

-I find it fairly frustrating that I spend hours a day pumping the milk out of my breasts and now spend hours a day pumping it into my daughter.....Ironic isn't it? this isn't how it's supposed to be.

-I had a small succsessful nipple attempt today, where Kaitlyn took about 20 cc's nice and slowly, but then had a smal gag and spit up everything she just nippled, (but it was a good attempt)

-Kaitlyn's pediatrician and partners have been great and are really trying to get everything cordianted between all of the doctors, and Katilyn's primary pediatrician (Hi Dr!) is checking in our blog and even gave me her personal contact info so we can get a hold of her.

-K had an EI appointment here today (early intervention) and once again, she seems to be doing very well developmentally (still no smiling), but the EI person confirmed that she is having some small hand reaching attempts at objects!

-K was 6 months old yesterday and 3 months adjusted yesterday.

-K had her last synygis shot of the flu season yesterday for RSV (It cost $1,500, thank goodness insurance covered it)


Anonymous said...

Hang in there. You must be exhausted. We're sending all our love. - Whitney

JP said...

Yay! Keep the good news coming! That's great that all of K's Drs are working together. Not everyone has that good fortune. :)

Have you tried using SimplyThick to thicken her milk? From what I know it's the only agent that thickens BM (rice cereal has a protein or enzyme that won't bind with BM). It worked for Halle for a long time. We have a ton left if you want me to send you some.

Jodi from PROM said...

Oh, I really feel for you. I can imagine your frustration and despair. Did you discontinue the added formula permanently? In addition to adding formula to my son's milk, I also add MCT Oil (Medium Chain Triglyceride). It adds 77cal per 2 Tb of oil. It might be something you want to ask your pediatrician about. My son didn't start it until after his reflux was better (just by coincidence) so I'm not sure if it will aggravate it or not. But worth checking into.

I'm sorry to hear about Brian's grandfather.

I hope you're able to get some sleep.
:) Jodi