Kaitlyn had a terrible lung infection

I’ve got to start on my taxes, so I have to keep this short.

Kaitlyn actually became very sick last week with a respiratory infection. This was our first really bad bug that went directly into her lungs, and it certainly reinforced to me that she does have Chronic Lung Disease. She started coughing one night and by the next day, it was horrible, wet thick coughs. I started her on inhaled Abuteral treatments as soon as she started coughing, but by the 3rd day, it was so bad we went to the doctor and Kaitlyn was put on oral steroids. They didn’t seem to be doing much until her 2nd dose when by the afternoon she started sounding much, much better.

We dont' know what it was, she was swabbed for RSV, but we don't have the results back yet.

I thought for a while that she might have to go the ER, but thankfully that was averted.

Unfortunately all the phlegm and much created her to have horrendous vomiting issues, and she lost an entire pound of weight. She had been so close to 20 pounds for a month or so and now she weighs only 19 pounds. Every pound has been such a success for us that this is very disappointing.

Of course Kaitlyn got sick when she did – she must have inherently known that mom, dad and Kaitlyn were going to go on their first real trip together (since going to LA last November) up to Tahoe, and mom and dad were going to take turns skiing. Once Kaitlyn started improving, Brian really wanted me to go on my own to Tahoe, as he’s had quite a few fun trips up to the mountains, so I ended up going to Tahoe last Thursday – Saturday.

I had a great wonderful time, I got 2 days of skiing in and went to a concert at Squaw Valley to see Donovan Frankenreiter (a singer that sounds a lot like Jack Johnson). I had a great time, and of course this incredible spring weather has set in so I skied in practically a t-shirt on Saturday!

Kaitlyn is taking many, many steps unassisted now, but still prefers to walk with walls/furniture or my assistance. She is so cute learning to walk, she holds up her hands and toddles about (hence the name toddler that I understand now) like a drunken sailor.

She’s also taking a tiny bit my mouth (we had quite the setback with the illness) but are starting to move forward again now. She’s actually sipping juice out of a juice box/straw, and today ate almost an entire star (like a cheerio but dissolves quicker).

However, what usually happens as soon as she gets anything in her mouth, her very active gag kicks in and we loose everything that we just pushed into her belly – very frustrating especially with her recent weight loss.

But I can attribute the recent interest in food (I’m hoping) to her diet change – as we are continuing the Blenderized Diet – which is real flood in a super-duper blender.

That’s it for my update today.

I’m working on putting together some walking videos.