Today the NICU had its annual Reunion Halloween party. Brian and I were planning on attending it, we even got up a little energy to round up some costumes. We wanted to talk to other NICU parents and to meet their once-preemie children.
However, when we called to check in on Kaitlyn this morning right before we were leaving the house at 11am, we discovered that at 4:30 am last night the doctors had to pull and then re-intubate her as she was having some very bad de-stating spells, which continued all morning. They have no idea what’s going on, but she is back up to 100% oxygen. We were a bit upset that they didn’t call us.
We quickly decided to not go to the NICU reunion party (we were not in the mood) and rushed to the hospital, where, unfortunately, there really wasn’t anything new to find out since we had spoken to the doc on the phone. She did have a destating spell while we were there, where she fell down to 35% saturation (it should be 90 or so) – she turned blue. Needless to say, I’m a bit of a mess now.
They took all types of blood tests (which means she had to have another blood transfusion and she had one the day before yesterday, or it may have been yesterday I can’t remember.) They say it might be an infection which they haven’t caught (so she’s back on antibiotics), or it could be the breast milk that she’s been given is leaking into her lungs (so they’ve stopped the feeds); basically they have no idea what it could be so they try to treat all the things they think it could be and hope she recovers.
Guess I can forget trying to hold her once again for a while.
Definitely a roller coaster ride....